Resources & Articles
Stuff You Can Buy at cicoach.com
The Guidebook Series: CAREER THRIVE When You Live with Chronic Illness
The only series of its kind dedicated to providing the strategies and tactics you need to thrive and achieve success in your career while living with a chronic illness. It includes such critical and useful information as:
- A list of workplace factors that you can use to evaluate your own work environment.
- A straight forward way to decide if you should disclose and what you should say.
- A model for decision making and getting the help you need when debilitating symptoms get in the way of top job performance.
And lots more!
"Increasing numbers of Americans must figure out how to have a good life while coping with chronic illness. The practical guidance offered by coaches like Rosalind Joffe is exactly what the doctor ordered (pun intended). This series will help people avert needless job loss and keep them participating in life.” – Jennifer Christian, MD, MPH,
Chair, Work Fitness and Disability Section, American College of Occupational and Environmental Medicine; and President, Webility Corporation.
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Stuff For Free at cicoach.com
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- Employment with MS - PDF booklet. Employment with MS Free download of Rosalind's recent publication, produced in conjunction with Accelerated Cure Project for MS and Teva Neuroscience (fill in the boxes below with your name and email address to receive the FREE booklet)
If you'd like this report please send an email to email@example.com and put "Send me my Employment with MS report please!" in the subject line.
- WorkingwithChronicIllness.com Rosalind's blog/eNewsletter focusing on issues that professionals with chronic illness face in the work place.
- Employment and Satisfaction Outcomes From a Job Retention Intervention Delivered to Persons with Chronic Diseases
If you'd like this report please send an email to firstname.lastname@example.org and put "Send me my Employment and Satisfaction Outcomes report please!" in the subject line.
- Reduction of Job Loss in Persons With Rheumatic Diseases Receiving Vocational Rehabilitation
If you'd like this report please send an email to email@example.com and put "Send me my Reduction of Job Loss report please!" in the subject line.
- "Playing the Hand You're Dealt" CFIDS Chronicle, Rosalind Joffe, Guest Contributor
If you'd like this report please send an email to firstname.lastname@example.org and put "Send me my Playing the Hand You're Dealt report please!" in the subject line.
- Organizational Dynamics, An Overlooked Dimension of Diversity: The Career Effects of Chronic Illness, Vol. 35, No. 2, pages 182 -195, 2006
Rosalind co-authored this article with Joy E. Beatty, Ph.D.
If you'd like this report please send an email to email@example.com and put "Send me my Organizational Dynamics report please!" in the subject line.
Autoimmune Information Network ~ www.aininc.org
Barbara Yodice, an autoimmune woman herself, is on a mission to give those of us with AI the information we need.
Breckenridge Outdoor Education Center ~ www.boec.org/ offering adaptive sports for people with disabilities.
Choosing Wisely Massachusetts ~ www.choosingwiselyma.org - a resource to learn more about how patients and providers in Massachusetts can think and talk about tests and procedures and when they may or may not be helpful. This information is relevant wherever you live in the United States.
CaringBridge ~ caringbridge.org/ offers free, easy-to-create web sites that help connect friends and family when you need it most. Check it out.
ChronicBabe.com ~ www.ChronicBabe.com
This is a resource and on-line community for babes who just happen to be chronic.
Diabetes Mine ~ www.diabetesmine.com
A blog that is a "gold mine" of information about diabetes.
ErgoRehab, Inc. ~ www.ergorehabinc.com
A leading provider of continuing education and resources in ergonomics, return to work and work injury management/prevention. This website offers free downloads and resources for those dealing with chronic illness or injuries looking for ways to live better, achieve success, improve their health situation and acquire hope.
Everyday Health ~ www.everydayhealth.com helps people with chronic illnesses improve their quality of life, stay informed and live with hope via webcasts that feature leading medical experts and patients.
Healthline ~ www.healthline.com/health/hepatitis-c/effects-on-the-body
Healthline offers a visual guide on how Hepatitis C affects the body
Life Work Business Partners ~ www.lifeworkpartners.com
A website to build your business and your life. Time management and development solutions for self employed professionals and entrepreneurs.
Lip Sticking: Smart Marketing to Women Online ~ windsormedia.blogs.com
This online blog is a marketing resource to all women.
Liv A Betes ~ www.livabetes.com
Liv A Betes focuses on wellness inspiring comedy. Don't miss The Glucose Police in GG's Wisdom!
Six Until Me ~ www.sixuntilme.com
"Diabetes doesn't define me but it helps explain me" Kerri writes from her heart about the daily struggles and laughs. This is a don't miss.
The Cancer Blog ~ www.thecancerblog.com
This site offers information and resources to people living with cancer.
The Staying Employed Program ~ www.bu.edu/stayemployed/ for people with chronic illness who live in Massachusetts.
Wise Women on Career Issues ~ wisewomengroup.com/wise-women-blogs/category/wise-woman-on-career-issues/
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Taunee Besson, a wise woman with Fibro, talks about working.
Blindsided: A Reluctant Memoir, Richard Cohen.
Body of Diminishing Motion: Poems and Memoir, Joan Seliger Sidey.
I'd Rather Be Working, A Step-by-Step Guide to Financial Self Support for People with Chronic Illness, Gayle Backstrom.
Just Like Life, Only More So and Other Stories of Illness, Dana Snyder-Grant.
Know Your Rights: A Handbook for Patients with Chronic Illness, Jennifer C. Jaff, Esq.
Living Well with Automimmune Disease, Mary J. Shomon.
Living Well with a Hidden Disability: Transcending Doubt and Shame and Reclaiming Your Life, Stacy Taylor, MSW, with Robert Epstein Ph.D.
The Anatomy of Change: A Way to Move Through Life's Transitions, Richard Strozzi Hechler.
The Anatomy of Hope: How People Prevail in the Face of Illness, Jerome Groopman, M.D.
The Autoimmune Connection: Essental Information for Women on Diagnosis, Treatment, and Getting on with your Life, Rita Baron-Faust, Jill P Buyon, M.D.
The Power of Focusing: A Practical Guide to Emotional Self-Healing, Ann Weiser Cornell.
Waking the Tiger: Healing Trauma, Peter A. Levine with Ann Frederick.
We Are Not Alone: Learning to Live with Chronic Illness, Sefra Kobrin Pitzele.
Women and Autoimmune Disease: The Mysterious Ways Your Body Betrays Itself, Robert G. Lahita, M.D., Ph.D.
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Disease Websites And Newsletters
Accelerated Cure Project for MS - a national non profit dedicated to curing MS by determining its causes. www.acceleratedcure.org/offerings/.
American Automimmune Related Diseases Association www.aarda.org.
Arthritis Foundation www.arthritis.org/.
Celiac Sprue Association www.csaceliacs.org/.
Chronic Syndrome Support Association www.cssa-inc.org/.
Crohn's & Colitis Foundation of America www.ccfa.org/.
CFIDS Association of America www.cfids.org/
Epilepsy Foundation of America www.epilepsyfoundation.org/.
FMS Community Newsletter www.fmscommunity.org.
International Pemphigus Foundation www.pemphigus.org/.
Pleural Mesothelioma Center www.pleuralmesothelioma.com - A comprehensive guide for patients affected by mesothelioma including top doctors and treatment centers across the nation and cutting edge treatment options.
National CFIDS Foundation www.ncf-net.org/.
National Multiple Sclerosis Association " target="_blank">www.msassociation.org/" target="_blank">www.msassociation.org/www.msassociation.org/.
National Multiple Sclerosis Society www.nationalmssociety.org/.
National Psoriasis Foundation www.psoriasis.org/home/.
New Mobility.com www.newmobility.com/.
Rest Ministries www.restministries.org/.
Scleroderma Foundation www.scleroderma.org/.
The Mesothelioma Group www.mesotheliomagroup.com - A small team of researchers and support specialists focusing on helping those affected by mesothelioma, and also supporting research based on curing and slowing the growth of mesothelioma.
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1-800-Toll Free Numbers for Health Information
AL-ANON World Service Headquarters, 1-800-356-9996
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Alcohol and Drug Helpline, 1-800-821-4357
Allergy Information Referral Line, 1-800-822-2762
Alzheimer's Association, 1-800-272-3900
Alzheimer's Disease Education and Referral Center, 1-800-438-4380
American Association of Kidney Patients, 1-800-749-2257
American Cancer Society Response Line, 1-800-227-2345
American Council of the Blind, 1-800-424-8666
American Council on Alcoholism, 1-800-527-5344
American Diabetes Association, 1-800-232-3472
American Foundation for Urologic Disease, 1-800-242-2383
American Heart Association Stroke Connection, 1-800-553-6321
American Institute for Cancer Research, 1-800-843-8114
American Kidney Fund, 1-800-638-8299
American Leprosy Missions (Hansen's Disease), 1-800-543-3131
American Liver Foundation, 1-800-223-0179
American Paralysis Association, 1-800-225-0292
American Parkinson's Disease Association, 1-800-223-2732
American Speech-Language-Hearing Association, 1-800-638-8255
APA Spinal Cord Injury Hotline, 1-800-526-3456
Arthritis Foundation Information Hotline, 1-800-283-7800
Asthma and Allergy Foundation of America, 1-800-727-8462
Better Hearing Institute, 1-800-327-9355
Brain Injury Association, Family Helpline, 1-800-444-6443
Cancer Information Service, 1-800-4-CANCER; 1-800-422-6237
CDC National AIDS Clearinghouse, 1-800-458-5231; 243-7012 (TDD)
CDC National HIV and AIDS Hotline, 1-800-342-2437; 1-800-344-7432 (Spanish):1-800-243-7889 (TDD)
CDC National STD Hotline, 1-800-227-8922
Children's Hospice International, 1-800-242-4453
Cleft Palate Foundation, 1-800-24-CLEFT or 1-800-242-5338
Crohn's and Colitis Foundation of America, Inc., 1-800-932-2423
Cystic Fibrosis Foundation, 1-800-344-4823
Deafness Research Foundation, 1-800-535-3323
Endometriosis Association, 1-800-992-3636
Epilepsy Foundation of America, 1-800-332-1000
Facial Plastic Surgery Information Service, 1-800-332-3223
Food Labeling Hotline, Meat and Poultry Hotline, 1-800-535-4555
Grief Recovery Helpline, 1-800-445-4808
Guide Dog Foundation for the Blind, Inc. 1-800-548-4337
Huntington's Disease Society of America, 1-800-345-4372
Impotence Information Center, v843-4315; 1-800-543-9632
International Childbirth Education Association, 1-800-624-4934
Job Accommodation Network, JAN, 1-800-526-7234
Juvenile Diabetes Foundation International Hotline, 1-800-223-1138
Lighthouse National Center for Vision and Aging, The, 1-800-334-5497
Living Bank, The, 1-800-528-2971
Lung Line National Jewish Center for Immunology and Respiratory
Medicine, 1-800-222-5864; 1-800-552-LUNG or 1-800-552-5864 (LUNG FACTS)
Lupus Foundation of America, 1-800-558-0121
Medic Alert Foundation, 1-800-432-5378; 1-800-344-3226
Medicare Telephone Hotline, 1-800-638-6833
Multiple Sclerosis Association of America, 1-800-LEARN-MS or 1-800-532-7667
National Center for Sight, 331-2020
National Clearinghouse for Alcohol and Drug Information, 729-6686;
National Council on Alcoholism and Drug Dependence Hopeline Inc.,
National Eye Care Project Hotline, 1-800-222-EYES or 1-800-222-3937
National Eye Research Foundation, 1-800-621-2258
National Headache Foundation, 1-800-843-2256
National Health Information Center, 1-800-336-4797
National Information Center for Children and Youth with Disabilities,
National Information Center for Orphan Drugs and Rare Diseases,
National Institute of Mental Health, 1-800-647-2642 or 1-800-421-4211
National Institute on Aging Information Center, 1-800-222-2225
National Institute on Deafness and Other Communication Disorders
Information Clearinghouse, 1-800-241-1044; 1-800-241-1055 (TT)
National Kidney Foundation, 1-800-622-9010
National Lead Information Center, 1-800-LEAD-FYI (Hotline) or 1-800-532-3394;
1-800-424-LEAD or 1-800-424-5323 (Clearinghouse); 1-800-526-5456 (TDD)
National Marrow Donor Program, 1-800-MARROW-2 or 1-800-627-7692
National Mental Health Association Information Center, 1-800-969-6642
National Neurofibromatosis Foundation, 1-800-323-7938
National Organization for Rare Disorders, 1-800-999-6673
National Parkinson's Foundation, Inc., 1-800-327-4545
National Pesticide Telecommunications Network, 1-800-858-7378
National Rehabilitation Information Center, 1-800-346-2742
National Resource Center on Homelessness and Mental Illness, c/o
Policy Research Associates, 1-800-444-7415 ext. 232
National Reye's Syndrome Foundation, 1-800-233-7393
National Spinal Cord Injury Association, 1-800-962-9629
National Stroke Association, STROKES or 1-800-787-6537
National Tuberous Sclerosis Association, 1-800-225-6872
Panic Disorder Information Line, 1-800-64-PANIC or 1-800-647-2642
Project Inform HIV/AIDS Treatment Hotline, 1-800-822-7422
Sickle Cell Disease Association of America, 1-800-421-8453
Simon Foundation for Continence, The, 1-800-237-4666
Spina Bifida Association of America, 1-800-621-3141
Stuttering Foundation of America, 1-800-992-9392
Tourette Syndrome Association, 1-800-237-0717
United Cerebral Palsy Association, 1-800-872-5827
United Network for Organ Sharing, 1-800-243-6667
United Scleroderma Foundation, 1-800-722-HOPE or 1-800-722-4673
Y-ME National Organization for Breast Cancer Information Support
Advocacy for Patients with Chronic Illness http://www.advocacyforpatients.org/.
Disability Rights and Resources http://www.doua.org/.
Job Accommodation Network (JAN) http://www.jan.wvu.edu/media/MS.html.
National Organization of Social Security Claimants' Representatives http://www.nosscr.org/.
U.S. Dept of Labor, Office of Disability Employment Policy http://www.dol.gov/odep/.
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Note: The resources are included as possible starting points for additional research. Rosalind Joffe and cicoach.com do not necessarily endorse the content, format or suggestions made in the resources listed herein. Please consult medical and legal experts with any specific questions or individual needs.
"Living with chronic illnesses for 30 years has taught me how critical work can be to health and well being. That's why I'm committed to giving people who live with chronic illness the tools they need to be employed."
Rosalind Joffee M.Ed.